The Story
This presentation about our son is now the #1 most popular documentary on YouTube on the subject of Batten Disease. This video has been watched over 220,000 times
What We Did
We spent countless hours interviewing parents, researchers and others. Traveled to Nashville & Rochester to record different conferences. We ended up over 12 hours of footage.
What We Achieved
With almost no budget, we have achieved national awareness on a small scale to say the least on a disease that affected our child and other families as well.